The European contingent of Disabled Peoples International (DPI
released a position statement in November on the new human genetics.
DPI is an international human rights organization committed
protection of disabled people's rights.
The statement addresses the threats to people with disabilities
by developments in human genetics, including the increasing
prenatal screening and pre-implantation diagnosis.
"Human genetics poses a threat to us because while cures
are promised, what is actually being offered are genetic tests
characteristics perceived as undesirable," the statement
perceived value and role as well as our human rights are continually
diminished by the questionable medical ideas and discriminatory
attitudes spawned by the new genetics. . ..
"We repudiate the utilitarian ideology which informs much
of the new
human genetics, particularly the assumption that society would
better off without the inconvenience and expense of disabled
In contrast, we want to see all clinical practice based on strong
principles of justice, ethics and non-discrimination with a
for diversity, autonomy and fully informed choice."
The DPI statement includes a list of 10 demands about the future
new human genetics. These include strict regulation of human
techniques; non-directive, rights-based genetic counseling;
for all children and celebration of human diversity; representation
disabled peoples on all human genetics advisory and regulatory
and protection of disabled people from discrimination and violation
through medical intervention. The full text of the DPI statement
viewed at <http://www.dpieurope.org/htm/bioethics/dpsngfullreport.htm>.