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Special Focus: Lessons of the Recent Gene Therapy Death

Genetic Crossroads
September 26th, 2007

Jolee Mohr on July 1, the day before she received the injection. Photo Courtesy of the Mohr family.

Picking Nits or Learning Lessons? Defensiveness on Display in Gene Therapy Death
by Marcy Darnovsky and Osagie K. Obasogie
Bioethics Forum
September 17th, 2007

The full story of a recent death in a gene therapy clinical trial is still unfolding. But there's a fair amount we do know, and much of it is troubling. Some gene therapy insiders have tried to diminish its significance by characterizing it as an unfortunate aspect of medical progress.

Gene Therapy Death Raises Ethical Issues
by Marcy Darnovsky
San Francisco Chronicle
September 13th, 2007

The recent death of a research subject in a gene therapy clinical trial raises critical, and troubling, questions.

Press Release: More Public Accountability Needed in Gene Therapy Death, Says Public Interest Group
Center for Genetics and Society Calls for Moratorium on Enrolling Some Patients
September 17th, 2007

The Recombinant DNA Advisory Committee met today to discuss a recent death in an experiment, but offered no answers to important ethical questions raised by the tragedy.

Targeted Genetics consent form [PDF]

Jolee Mohr, a 36-year-old Illinois resident, was given this 15-page document before participating in a gene therapy experiment. She died on July 24, 2007, shortly after her second injection with the gene transfer product.


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