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About Human Rights & Human Biotechnology


Claims to universal human rights depend, in part, on formal recognition of our common humanity. Many countries use human rights as a broad framework to think about regulatory options for human biotechnologies. International declarations also commonly use this framework. Examples include the Council of Europe's Convention on Human Rights and Biomedicine and UNESCO's Universal Declaration on the Human Genome and Human Rights.

The Convention on Biomedicine and Human Rights, like a number of other international agreements and declarations, rejects biotechnology applications that would alter the genomes of future generations. Manipulating genes in a manner that encodes inequality into our genes could easily unravel centuries of progress toward respecting human worth.



California needs to do more than apologize to people it sterilizedby Los Angeles Times EditorialLos Angeles Times January 21st, 2017LA Times calls for justice and accountability from the aggressive eugenics practices in state hospitals and homes by offering reparations to survivors.
Written evidence for the Genomics and Genome-Editing Inquiry of the House of Commons Science and Technology Committeeby Edward Hockings and Lewis CoyneEthics and GeneticsJanuary 20th, 2017UKs bioscience policy has been framed in terms of commercial value at the expense of substantive public consultation and broader deliberation.
When a Study Cast Doubt on a Heart Pill, the Drug Company Turned to Tom Priceby Robert FaturechiProPublicaJanuary 19th, 2017Owners of BiDil sought to remove 2009 study about its safety and effectiveness from a government website by turning to Rep. Tom Price, whom the CEO had given the maximum $2,700 campaign donation and who is nominated by Donald Trump to become head of the Department of HHS.
Do We Need an International Body to Regulate Genetic Engineering?by Kristen V. BrownGizmodoJanuary 18th, 2017Science reaches across borders, which poses challenging questions for us to decide what the future should look like--locally and globally.
Controversial IVF technique produces a baby girl -- and for some, that's a problemby Susan ScuttiCNNJanuary 18th, 2017Stakes are rising as genetic modifications produced in a girl baby could be passed onto her future children. The risks remain unknown.
CGS Board Member Leads Redress Call for California Survivors of Eugenic Sterilization by Marcy DarnovskyJanuary 16th, 2017Scholars estimate that more than 800 people alive today were sterilized in California state institutions, and call on the state to consider compensation and redress.
The Promise and Peril of Emerging Reproductive Technologiesby Ekaterina PeshevaHarvard Medical SchoolJanuary 11th, 2017IVG, thus far successful only in mice, allows scientists to create embryos in a lab by reprogramming any type of adult cell to become a sperm or egg cell.
How Gene Editing Could Ruin Human Evolution[cites CGS's Marcy Darnovsky]by Jim KozubekTimeJanuary 9th, 2017There are no superior genes. Genes have a long and layered history, and they often have three or four unrelated functions, which balance against each other under selection.
Designer babies: an ethical horror waiting to happen?by Philip BallThe Guardian January 8th, 2017A perfectly feasible 10-20% improvement in health via PGD, added to the comparable advantage that wealth already brings, could lead to a widening of the health gap between rich and poor, both within a society and between nations.
Philippine police arrest surrogate mothers-to-be in human trafficking crackdownby Lindsay MurdochSydney Morning HeraldJanuary 4th, 2017International surrogacy agents operate across multiple borders, flying surrogates, eggs, doctors and parents to whichever country is the most porous for their business.
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