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About Human Rights & Human Biotechnology

Claims to universal human rights depend, in part, on formal recognition of our common humanity. Many countries use human rights as a broad framework to think about regulatory options for human biotechnologies. International declarations also commonly use this framework. Examples include the Council of Europe's Convention on Human Rights and Biomedicine and UNESCO's Universal Declaration on the Human Genome and Human Rights.

The Convention on Biomedicine and Human Rights, like a number of other international agreements and declarations, rejects biotechnology applications that would alter the genomes of future generations. Manipulating genes in a manner that encodes inequality into our genes could easily unravel centuries of progress toward respecting human worth.

Dangers of an Unscientific Policy Process:
Why the UK’s legalization of “three-person babies” should not be the model for CRISPR
by Jessica Cussins, Biopolitical Times guest contributorOctober 25th, 2016The UK’s consideration of the science and public support for “mitochondrial replacement” may seem robust on its surface, but when it comes to CRISPR germline genome editing policy, we can and must do better.
Surprisingly few new parents enlist in study to have baby's genome sequencedby Jocelyn KaiserScience MagazineOctober 19th, 2016NIH-funded project, BabySeq, seeks to analyze protein-coding DNA for mutations in 7,000 genes associated with childhood diseases.
Crispr’s IPO doesn’t hit its targetby Robert WeismanThe Boston GlobeOctober 19th, 2016CRISPR Therapeutics' public offering raises half that of its rivals Editas & Intellia -- a sign that the market may be pulling back on genome editing stocks.
Social science: Include social equity in California Biohubby Science FARE (Feminist Anti-Racist Equity) Collective: Jessica Cussins, Kate Weatherford Darling, Ugo Edu, Laura Mamo, Jenny Reardon & Charis ThompsonNatureOctober 19th, 20165–7% of the Chan-Zuckerberg Initiative's Biohub health-research budget should be used to design and monitor goals of justice and equality from the outset, or social inequalities could limit the project's potential.
Reports of ‘three-parent babies’ multiplyby Sara ReardonNature NewsOctober 19th, 2016Claims of infants created using mitochondrial manipulation techniques in Mexico and China, and two pregnancies in the Ukraine, stir scientific and ethical debate.
World Bioethics Day: Human Dignity and Human Rightsby Leah LowthorpBiopolitical TimesOctober 19th, 2016October 19 marks the first such international event sponsored by the UNESCO Chair in Bioethics. This year's theme of Human Dignity and Human Rights will be celebrated in 55 countries worldwide.
What Stem Cell Researchers Talk About When They Talk About Ethicsby Danielle VentonKQEDOctober 18th, 2016"Biology is really complicated! Engineers who design something expect it to work. But if you put something [designed] into an organism, the chances that something odd will happen are extremely high.”
7 Highlights from Nuffield Council’s Review on the Ethics of Genome Editingby Jessica Cussins, Biopolitical Times guest contributorOctober 18th, 2016A recent UK report discusses social and political implications of genetically engineering human reproduction and other controversial CRISPR applications.
DNA database could help predict your disease — then get you firedby David LazarusLos Angeles TimesOctober 14th, 2016The "Precision Medicine" project of introducing big data into healthcare comes with a host of risks for individuals and communities, including privacy and genetic discrimination.
Three-person baby 'race' dangerous[citing CGS' Marcy Darnovsky]by James GallagherBBCOctober 12th, 2016Scientists and ethicists warn of fertility doctors forum-shopping to perform dangerous mitochondrial manipulation experiments.
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