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About Disability & Human Biotechnology


Disability rights advocates have been among the earliest and most vocal critics of emerging genetic and reproductive technologies. Many people with disabilities are acutely aware that technologies enabling the selection of “good” genes and “normal” traits can devalue disabled people’s bodies and ultimately their lives.

This concern is informed by past and ongoing discrimination against people with disabilities that often includes brutal practices. For example, twentieth-century eugenicis­ts in the United States and some European countries sponsored programs that sterilized tens of thousands of disabled people. The Nazi genocide began with doctors and nurses exterminating over 100,000 disabled people in German medical facilities; tens of thousands more perished in concentration camps.

This historical context gives pause to disability rights advocates concerned about existing selection technologies that are increasingly being used to prevent the birth of children with particular traits, as well as future technologies that could be used to modify children’s genes.



California needs to do more than apologize to people it sterilizedby Los Angeles Times EditorialLos Angeles Times January 21st, 2017LA Times calls for justice and accountability from the aggressive eugenics practices in state hospitals and homes by offering reparations to survivors.
California voters were promised cures. But the state stem cell agency has funded just a trickle of clinical trialsby Charles PillerSTATJanuary 19th, 2017CIRM has distributed most of Prop 71's $2.2 billion grant funds so far to build labs and pay for basic research that are tied to financial conflict of interests.
Do We Need an International Body to Regulate Genetic Engineering?by Kristen V. BrownGizmodoJanuary 18th, 2017Science reaches across borders, which poses challenging questions for us to decide what the future should look like--locally and globally.
CGS Board Member Leads Redress Call for California Survivors of Eugenic Sterilization by Marcy DarnovskyJanuary 16th, 2017Scholars estimate that more than 800 people alive today were sterilized in California state institutions, and call on the state to consider compensation and redress.
The Promise and Peril of Emerging Reproductive Technologiesby Ekaterina PeshevaHarvard Medical SchoolJanuary 11th, 2017IVG, thus far successful only in mice, allows scientists to create embryos in a lab by reprogramming any type of adult cell to become a sperm or egg cell.
How Gene Editing Could Ruin Human Evolution[cites CGS's Marcy Darnovsky]by Jim KozubekTimeJanuary 9th, 2017There are no superior genes. Genes have a long and layered history, and they often have three or four unrelated functions, which balance against each other under selection.
Designer babies: an ethical horror waiting to happen?by Philip BallThe Guardian January 8th, 2017A perfectly feasible 10-20% improvement in health via PGD, added to the comparable advantage that wealth already brings, could lead to a widening of the health gap between rich and poor, both within a society and between nations.
2016 Fear vs Hope: Gene Editing— Terrible turning point?by Pete ShanksDeccan ChronicleJanuary 1st, 2017As the tools for gene editing rapidly advance, we approach our best chance to prevent the rise of a modern, uncontrolled and dangerously ill-considered techno-eugenics.
Unexpected Risks Found In Replacing DNA To Prevent Inherited Disordersby Jill NeimarkNPRJanuary 1st, 2017Scientists are increasingly concerned that "3-person IVF" techniques may allow flawed mitochondria to resurface and threaten a child's health.
China’s $9 billion effort to beat the U.S. in genetic testing[cites CGS's Marcy Darnovsky]by Ylan Q. MuiWashington PostDecember 30th, 2016Chinese investors — both private and government-supported — are backing American start-ups and funding promising new companies at home.
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