A ‘miracle cure’ for deafness? For people like me, here’s why that isn’t our dream
By Oliver James Campbell,
The Guardian
| 05. 13. 2024
As someone who has been hard of hearing since I was a teenager, I read with great interest about the case of Opal Sandy – the 18-month-old British toddler who has recently had her hearing “restored” in a pioneering medical trial.
Opal was born with auditory neuropathy, which is caused by the disruption of nerve impulses travelling from the inner ear to the brain, and which left her completely deaf. But after taking part in what is being heralded as a “groundbreaking” gene therapy trial at Addenbrookes hospital in Cambridge, she can now hear almost perfectly.
It’s fantastic news that this little girl can now hear. She will no longer have to go through the negative situations that people with hearing loss often face. She won’t experience being self-conscious about her hearing, as I did as an adolescent, nor the difficulties of meeting new people, such as having to ask them to repeat themselves again and again. She won’t miss out on job progression because of her hearing loss. What is often required to get on in a company...
Related Articles
By Jonathan Matthews, GMWatch | 12.11.2025
In our first article in this series, we investigated the dark PR tactics that have accompanied Colossal Bioscience’s de-extinction disinformation campaign, in which transgenic cloned grey wolves have been showcased to the world as resurrected dire wolves – a...
By Jenny Lange, BioNews | 12.01.2025
A UK toddler with a rare genetic condition was the first person to receive a new gene therapy that appears to halt disease progression.
Oliver, now three years old, has Hunter syndrome, an inherited genetic disorder that leads to physical...
By Simar Bajaj, The New York Times | 11.27.2025
A common cold was enough to kill Cora Oakley.
Born in Morristown, N.J., with virtually no immune system, Cora was diagnosed with severe combined immunodeficiency, a rare genetic condition that leaves the body without key white blood cells.
It’s better...
By Rachel Hall, The Guardian | 11.30.2025
Couples are needlessly going through IVF because male infertility is under-researched, with the NHS too often failing to diagnose treatable causes, leading experts have said.
Poor understanding among GPs and a lack of specialists and NHS testing means male infertility...