Gender Justice and Disability Rights Coalition on Heritable Genome Editing

About MVI | MVI Working Group | Gender Justice & Disability Rights Coalition

Social Justice and Human Rights Principles for Global Deliberations on Heritable Human Genome Editing

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The Gender Justice and Disability Rights Coalition on Heritable Genome Editing is part of CGS’ Missing Voices Initiative and was launched as part of global commitments to the Technology and Innovation Action Coalition of the Generation Equality Forum. The Coalition is developing principles, tools, and model policies to centralize gender justice and disability rights in public discussions and policymaking regarding heritable genome editing. The Coalition is made up of 16 feminist advocates and scholars from 10 countries who come from a range of civil society organizations and academic institutions committed to feminist, disability rights, anti-eugenic, and intersecting justice-oriented perspectives.

Gender justice and disability rights are crucial lenses through which to challenge heritable genome editing, prioritizing women and pregnant people’s health, rights, and freedom from exploitation, and challenging the notion that our world and our families are better off without people with disabilities. These two lenses address intersecting concerns related to racial justice, Indigenous sovereignty, LGBTQ rights, environmental justice, human rights, and the rights of those who would be born through this technology. Voices from our fields and communities must be meaningfully included in public, policy, or scientist-dominated conversations; to date, this has not been the case. The Coalition aims to change this. 

Members whose names are followed by an * are individual members. Their affiliations are included for identification purposes only.