U.S. Federal

The U.S. has few federal policies specifically addressing human genetic or assisted reproductive technologies. One exception is the 2008 Genetic Information Nondiscrimination Act (GINA), which prohibits the use of individuals’ genetic information in employment and health insurance. Another is the 1992 law requiring that fertility clinics provide standardized reports of success rates to the Centers for Disease Control.

Unlike scores of other countries with advanced biotech sectors, the U.S. has no federal laws regulating human reproductive cloning or heritable genome editing. However, the Food and Drug Administration (FDA) has asserted authority over these practices; the National Institutes of Health (NIH) makes decisions about research funding; and Congress has exerted some control over clinical applications of research involving human embryos through budget riders.

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The new Biden-Harris Administration faces a number of harrowing challenges in which science and technology policies will be critical.

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The genetic data will be added to an FBI database for violent criminals.
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The United States fertility market is growing very rapidly, and is projected to reach $15.4 billion in 2023, more than double...

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The president of one of the country’s largest at-home genetic testing companies has apologized to its users for failing to disclose that it was sharing DNA data with federal investigators.
A matrix tunnel of big data and numbers

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A chaotic illustration of a DNA strand

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A public hearing is in session, angled as if the viewer was in the audience facing the representative officials.

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Crime scene tape, gloves, and packages of evidence are stacked in a pile on a desk.

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Three wine glasses are pictured. One glass has a red liquid, another has a blue liquid. The final glass picture has a clear transparency, which displays the red and blue glasses through it.

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Illustrated image of shackled hands. Inside the hands lie words of systemic social injustice, such as "classism" and "racism."

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