The Center for Genetics and Society brings social justice and human rights to the center of public and policy discussions about human genetics and assisted reproduction.

Featured

Challenging the Legacies of Eugenics in Science, Medicine, and Technology

By CGS | 04.17.2024
Biopolitical Times

CGS is excited to announce the launch of a new anti-eugenics initiative that has been years in the making. Legacies of Eugenics in Science, Medicine, and Technology kicks off with a monthly essay series published at the Los Angeles Review of Books that will expose and contest the reemergence of eugenic ideas in contemporary health sciences, human biotechnology, public health, and medicine. Community and campus-based events featuring the authors are also being planned. The project is a collaboration among CGS...

Society

Groundbreaking principles on heritable genome editing bring social justice voices to the fore

By Emily Galpern, Guest Contributor | 02.14.2024
Biopolitical Times

CGS’ Gender Justice and Disability Rights Coalition has just released Social Justice and Human Rights Principles for Global Deliberations on Heritable Genome Editing. The Principles explicitly center gender justice, disability rights, and human rights in deliberations addressing heritable genome editing, an arena that has largely been the purview of scientists and bioethicists. The Principles have been endorsed by more than 70 individuals and organizations from around the world.

Heritable genome editing – using CRISPR or other tools to alter...

Global Governance

The Unexpected Plight of Whistleblowers

By Emily Beitiks, Guest Contributor | 05.10.2024
Biopolitical Times

If you’re looking for a book where good triumphs over evil, The Occasional Human Sacrifice: Medical Experimentation and the Cost...

Arts & Culture

Gene Therapy in a Capitalist Economy

By Pete Shanks | 04.29.2024
Biopolitical Times

On April 26, Pfizer issued a press release announcing that:

U.S. FDA Approves Pfizer’s BEQVEZ™ …, a One-Time Gene Therapy...

Biopolitical Times

The Unexpected Plight of Whistleblowers

By Emily Beitiks, Guest Contributor | 05.10.2024

If you’re looking for a book where good triumphs over evil, The Occasional Human Sacrifice: Medical Experimentation and the Cost...

Arts & Culture

Gene Therapy in a Capitalist Economy

By Pete Shanks | 04.29.2024

On April 26, Pfizer issued a press release announcing that:

U.S. FDA Approves Pfizer’s BEQVEZ™ …, a One-Time Gene Therapy...

End of the Future of Humanity

By Pete Shanks | 04.25.2024

Not the species, certainly, but the Institute of that name, which was founded by transhumanist philosopher Nick Bostrom in 2005...

Human Genetic Modification

News

Great Ormond Street hoping to license gene therapy for ‘bubble baby’ syndrome

By Hannah Devlin, The Guardian | 05.14.2024

Photo by Kind and Curious from Unsplash

When Great Ormond Street hospital (Gosh) published the results of its gene therapy trial for “bubble baby” syndrome it was hailed as a medical breakthrough. The treatment had a more than 95% success...

Human Genetic Modification

The DNA Test Delusion

By Kristen V. Brown, Bloomberg | 05.14.2024

Answers to our greatest questions, we were told about a decade ago, could be ours if we just spat in a tube. Celebrities were using DNA tests to trace their ancestry on the hit TV show Finding Your Roots...

Patents & Other IP

Americans overwhelmingly say access to IVF is a good thing

By Gabriel Borelli, Pew Research Center | 05.13.2024

Photo by Campaign Creators on Unsplash

The political debate around access to in vitro fertilization (IVF) intensified this year,  following an Alabama Supreme Court decision in February that frozen embryos could be considered children.

An April Pew Research Center...

U.S. Federal

Deaf baby hears for the first time after ‘groundbreaking’ gene therapy trial

By Victoria Bisset and Adela Suliman, The Washington Post | 05.09.2024

Photo by CDC from Unsplash

A baby girl born with profound genetic deafness can now hear unaided after receiving a “groundbreaking” gene therapy trial, Britain’s National Health Service said Thursday.

Opal Sandy, an 18-month-old from Oxfordshire, England, is the first...

Human Genetic Modification

Video
Reproduction and Family Formation: The State and the Market
Use Gene Editing to Make Better Babies | Debate | Intelligence Squared U.S.
The 'Perfect' Baby?: The Dangers of Gene Editing in Assisted Reproduction