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Jamie has a rare disease called X-SCID, or Bubble Boy disease, which means he was born with no immune system. But last year he had his cells edited to add a gene called IL-2. During our visit, Jamie played in the dirt, picking up sticks and rocks and handing them to me. “It was scary in some aspects,” his mom, Jennifer Golliday, said of the treatment. “I was willing to risk it.” He now has a small army of T-cells, and no longer wears a mask. By early afternoon, he asked to hold my hand.
David Vetter was perhaps the most famous Bubble Boy. He traveled to a movie theater to see “Return of...