Event

The Tarrytown Meetings

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The Tarrytown Meetings were a series of major invitational convenings of advocates, scholars, policy experts, creative artists and others working to ensure that human biotechnologies and related emerging technologies support rather than undermine social justice and the public interest.

Over 200 colleagues participated in the three Tarrytown Meetings, held in July of 2010, 2011 and 2012 at the Tarrytown House Estate and Conference Center in Tarrytown, New York.

Among the topics addressed were assisted reproductive technologies and practices (including sex selection and trait selection, commercial surrogacy and reproductive tourism, the use of women’s eggs for fertility and research, and gamete donor anonymity), genetic testing and personalized medicine, race and genetics, human gene patents, DNA forensics, biobanks, human genetic modification, neo-eugenic ideologies and practices, and synthetic biology. Sessions also addressed such cross-cutting topics as national and international policies and politics, ethical and philosophical foundations for our concerns and proposals, communications and messaging, grassroots organizing and legislative strategies.

For more information about the Tarrytown Meetings, please contact Marcy Darnovsky at mdarnovsky[AT]geneticsandsociety[DOT]org.

 

 

 

 

 

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2010-07-27T12:00:00

Unraveling the Fertility Industry: Challenges and Strategies for Movement Building

Director of Finance and Administration
Submitted by Charles Garzon on

Marcy Darnovsky attended and presented at this international consultation on commercial, economic and ethical aspects of assisted reproductive technologies hosted by Sama Resource Group for Women and Health in New Delhi between 22 and 24 January 2010.

An international consultation hosted by Sama Resource Group for Women and Health in New Delhi between 22 and 24 January 2010

In a time when tissues, gametes, technologies, as well as the people who seek these technologies, are crossing borders, concerns about the commercial, economic and ethical aspects of assisted reproductive technologies go beyond national or even regional boundaries. This consultation aimed to bring together a balanced representation of activists, scholars and researchers from different movements, networks, and organisations from across the world working on similar concerns.

Sama Resource Group for Women and Health published a report [PDF] on the consultation, which includes a summary of Marcy Darnovsky's presentation, "Commercialisation of Reproductive and Genetic Technologies: What Lessons for Biotech Developments around the Globe?"

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Date
2010-01-22T12:00:00

Unraveling the Fertility Industry: Challenges and Strategies for Movement Building

Submitted by admin on

Unraveling the Fertility Industry: Challenges and Strategies for Movement Building 

An international consultation hosted by Sama Resource Group for Women and Health in New Delhi between 22 and 24 January 2010

In a time when tissues, gametes, technologies, as well as the people who seek these technologies, are crossing borders, concerns about the commercial, economic and ethical aspects of assisted reproductive technologies go beyond national or even regional boundaries. This consultation aimed to bring together a balanced representation of activists, scholars and researchers from different movements, networks, and organisations from across the world working on similar concerns.

Sama Resource Group for Women and Health published a report [PDF] on the consultation, which includes a summary of Marcy Darnovsky's presentation, "Commercialisation of Reproductive and Genetic Technologies: What Lessons for Biotech Developments around the Globe?"

 

 

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2010-01-22T12:00:00

Progress in Bioethics: Science, Policy, and Politics

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A special presentation sponsored by the Center for American Progress

Progress in Bioethics: Science, Policy, and Politics

January 7, 2010, 12:00pm - 1:30pm

President Obama pledged in his inaugural address to "restore science to its rightful place." He followed this up with a presidential memorandum of scientific integrity to accompany his executive order restoring funding for embryonic stem cell research. On November 24, another executive order established the Presidential Commission for the Study of Bioethical Issues, and just days ago, the NIH announced the approval of 13 new human embryonic stem cell lines for federally funded research.

After more than a decade of conservatives' dominance of public bioethical debate, progressive bioethics is finally in ascendance. Editors Jonathan Moreno and Sam Berger map this new landscape with Progress in Bioethics, an anthology featuring contributions from progressive and nonprogressive bioethicists alike. They tackle substantive policy issues such as stem cell research, conscience clauses, and health care reform. More generally, they discuss the meaning of progressive bioethics, its place in the political arena, its stance toward biotechnology, and its interplay with religion. And most importantly, they seek to apply the fundamental progressive values of social justice, critical optimism, and practical problem solving-values that are needed now more than ever to restore ideological balance to the politics and policy of the life sciences.

Please join CAP and Democracy: a Journal of Ideas for a lively panel discussion led by Jonathan Moreno, Senior Fellow at CAP, Editor-In-Chief of Science Progress, and co-editor of Progress in Bioethics.

Featured panelists:

  • Sam Berger, JD Candidate, Yale Law School; Co-Editor, Progress in Bioethics
  • Michael Tomasky, Editor, Democracy: A Journal of Ideas
  • Clay Risen, Managing Editor, Democracy: A Journal of Ideas
  • Kathryn Hinsch, Founder and Board President, Women's Bioethics Project; Contributor Progress in Bioethics
  • Marcy Darnovsky, Associate Executive Director, Center for Genetics and Society; Contributor Progress in Bioethics

Moderated by:

  • Jonathan Moreno, Senior Fellow, Center for American Progress; Editor-In-Chief, Science Progress, Co-Editor, Progress in Bioethics

 

Admission is free.

RSVP to attend this event

January 7, 2010, 12:00pm - 1:30pm

Space is extremely limited. RSVP required.
Seating is on a first-come, first-served basis and not guaranteed.

Lunch will be served at 11:30 a.m.

Center for American Progress
1333 H St. NW, 10th Floor
Washington, DC 20005
Map & Directions

Nearest Metro: Blue/Orange Line to McPherson Square or Red Line to Metro Center

For more information, call 202-682-1611.

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2010-01-07T12:00:00
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[Video featuring CGS's Marcy Darnovsky]
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Center for American Progress

Global Governance of the New Human Biotechnologies

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The new human biotechnologies have potential for both great good and great harm. If used responsibly they could lead to important medical advances. If misused, however, they could exacerbate existing health disparities, lay a basis for new forms of discrimination and open the door to high-tech eugenic practices and ideologies that could undermine the foundations of civil society and indeed our common humanity. Many countries have begun developing national policies that address these challenges. However, some policies will need to be applied on a global level if they are to be meaningful. Without an international regulatory framework, regulatory arbitrage could prompt a race to the bottom regarding bioscience research and applications. It will not be easy to agree upon international accords, but they stakes are high and the coming decade affords a rare window of opportunity for pro-active policy development.

The session on November 4 will bring presenters and participants together to address foundational questions regarding the prospects of international governance of new human biotechnologies. What technologies and practices are of greatest concern? What is the current state of national and international policy addressing them? What intergovernmental, NGO, private sector other bodies and networks are in a position to play leadership roles? What sets of values might inform international accords? What are the strengths and weakness of various sorts of policy instruments? Are there alternatives to formal accords that might be more readily achieved and equally or more effective? And what action should be taken now if we want to see effective policies adopted over the coming decade?

Presenters:

  • George Annas, Boston University School of Public Health
  • Francis Fukuyama, Paul H. Nitze School of Advanced International Studies
  • Richard Hayes, Center for Genetics and Society
  • Chamundeeswari Kuppuswamy, University of Sheffield, United Kingdom


When: Nov. 4, 2:00-4:30 pm
Where: Rome Building 806
Johns Hopkins University School of Advanced International Studies (SAIS)
1619 Massachusetts Avenue NW, Washington, DC

Sponsors:

 

  • The Bernard Schwartz Forum on Constructive Capitalism
  • Center for Genetics and Society
  • Consortium of Policy, Science & Outcomes

Agenda
Summary of Discussion [PDF]
Background Reading
Speaker Bios
Participant List

 

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2009-11-04T12:00:00
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Challenges and opportunities over the coming decade

Geneticizing Disease: Implications for Racial Health Disparities

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Please join Generations Ahead and the Center for American Progress for a special presentation:

Geneticizing Disease: Implications for Racial Health Disparities 

April 22, 2008 10:30-12:00 at the Greenlining Institute in Berkeley, California

Moderator:

Jamie D. Brooks, Project Director on Race, Health and Human Rights, Generations Ahead

Panelists:

Meredith L. King, Health Policy Analyst, Center for American Progress

Mildred Thompson, Senior Director and Director of the PolicyLink Center for Health and Place

Dorothy Roberts, Kirkland and Ellis Professor, Northwestern University Law School. Currently a fellow at Stanford University's Research Institute of Comparative Studies in Race and Ethnicity focusing on "Race Consciousness in Law, Politics, and Biotechnology."

Today's dialogue in medical journals and the mainstream press on health disparities in American society increasingly focuses on individuals' genetic predispositions to disease. More and more, race is interjected into this dialogue as scientists link genes of certain racial groups to medical conditions while pharmaceutical companies increasingly seek to medicate those conditions. Unfortunately, during this process the focus on reducing and preventing racial health disparities - which in large part can be attributed to social determinants - becomes obscured.

The Center for American Progress and Generations Ahead will explore these trends and their implications for addressing racial health disparities by hosting a public dialogue. Meredith King, co-author of "Geneticizing Disease: Implications for Racial Health Disparities," which will be released at the event, will provide an overview of the issue and the paper's findings. Law professor Dorothy will follow with a legal and racial perspective on the implications of "geneticizing" disease. And in closing, Mildred Thompson will discuss the known non-medical determinants of health, such as environment, insurance status, and other socio-economic factors. Jamie D. Brooks, co-author of the paper, will moderate the discussion to follow.

Location

The Greenlining Institute

1918 University Avenue Berkeley, CA 94704

Greenlining Institute Directions: The offices are located on University Avenue between Martin Luther King Jr. Avenue and Milvia just 3 blocks west of the U.C. Berkeley campus. The office is 3 short blocks from the Downtown Berkeley Bart Station.

Parking: There are metered parking places along University Avenue. Parking is also available in the Promenade Parking Garage, 1936 Addison Street, directly behind our building.

Biographies

Meredith King serves as the Health Policy Analyst at the Center for American Progress. As a member of the health team, King collaborates with staff and senior fellows in advancing a broad range of health issues, including universal health care. Her primary focus of research is on minority health and racial and ethnic health disparities. Prior to joining the Center, King worked at the Health Assistance Partnership of Families USA, serving as the Medicaid Research Analyst. In that job, she worked with a network of Medicaid ombudsmen and consumer health assistance programs by supplying them the latest research regarding Medicaid policy in their respective states. King obtained a Bachelor of Arts Degree in Public Policy and American History from Washington and Lee University in 2003. In May 2005, she completed a Masters of Public Policy with a concentration in Social Policy from American University.

Dorothy Roberts joined Northwestern's faculty in fall 1998 with a joint appointment as a faculty fellow at the Institute for Policy Research. She is a frequent speaker and prolific scholar on issues related to race, gender, and the law and has published more than 60 articles and essays in books and scholarly journals, including Harvard Law Review, Yale Law Journal, and Stanford Law Review, authored 2 award-winning books, and co-edited 5 casebooks and anthologies. She received fellowships and grants from the National Science Foundation, Searle Fund, Fulbright Scholars Program, and Harvard University Program in Ethics and the Professions, and as a visiting professor was the recipient of the Outstanding First-Year Course Professor Award for 1997-98. She is currently conducting research on the effects of child welfare agency involvement in African-American neighborhoods and on race-based biotechnologies.

Mildred Thompson, Senior Director and Director of the PolicyLink Center for Health and Place, holds a master's degree in social work from New York University and has over 20 years experience in the health field. She has been responsible for PolicyLink initiatives that offer solutions to problems rooted in the connection between health and neighborhood factors. These include initiatives that engage community leaders and residents in achieving policies that reduce environmental triggers of childhood asthma, increase opportunities for local access to healthy food, and improve community opportunities for physical activity.

Jamie D. Brooks is the project director on race, health, and justice for the Center for Genetics and Society and has been working to secure universal health access for a number of years. Before joining the Center for Genetics and Society she was a staff attorney for the Nation Health Law Program (NHeLP) where she focused on reproductive rights and justice for all women, implementing human rights principles into the firm's advocacy, environmental justice issues, and language access issues. Prior to working for NHeLP, she served as a law clerk in the District of Columbia Superior Court and legal and policy clerk to the National Asian and Pacific American Women's Forum. She received her J.D. from Washington College of Law at American University in 2003 and her B.A. from Rice University in 2000.

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2008-04-22T12:00:00

Michael J. Sandel

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Please join us for this exciting event...

Michael J. Sandel
Anne T. and Robert M. Bass Professor of Government
Harvard University

The Case Against Perfection:
Ethics in the Age of Genetic Engineering

Monday, May 7
4:30-6:00 pm

Berkeley City Club
2315 Durant Ave [map]
(between Dana & Ellsworth;
1 block from campus; )

Michael Sandel is one of America’s foremost political and moral thinkers. In his new book, The Case Against Perfection: Ethics in the Age of Genetic Engineering, Sandel argues that the pursuit of perfection through genetic “enhancement” represents a bid for mastery and domination that could profoundly undermine values of equality, democracy and community.

This is Michael Sandel's first visit to the Bay Area to discuss these topics. It will be a unique opportunity for dialogue on the wide range of questions that his new book addresses.

More information on The Case Against Perfection and Michael Sandel.

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2007-05-07T12:00:00
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Speaking on The Case Against Perfection